• Supporting Charlie

    Nine-year-old Charlie has an undiagnosed forms of ataxia – the confirmation that he had any type of ataxia took...

    15 November 2017

  • Back on track

    While her school friends were running around the playground, Beka Libby spent her childhood in and out of hospital...

    07 June 2017

  • Finding the right information

    Joanne’s Aunt June describes her eight-year-old niece as ‘a strong little character with a bubbly personality and a smile...

    21 November 2016

  • A shared experience

    Coming to terms with a loved ones diagnosis of a rare condition is difficult enough, even more so when...

    25 May 2016