Two-year-old Oscar-Ray arrived safely at 40 weeks, after a problem-free pregnancy for mum, Charlotte. But just two days later, he began having seizures and was rushed to the hospital neonatal unit to be observed by a specialist team, where he was having up to five seizures an hour.
New paediatric ataxia centre
In December last year, Ataxia UK opened their first Paediatric Ataxia Centre, in Sheffield, with the intention to provide the best possible outpatient care to children and families, including diagnosis, treatment including advanced neuro-imaging and genetic testing of ataxias.
Early years support making a big difference
Lambeth Early Action Partnership (LEAP), led by the National Children’s Bureau, aims to improve children’s life chances in their early years (age 0-3). One part of this project is LEAP’s Overcrowded Housing Support Service, providing support to families living in overcrowded accommodation.
Local lifelines for deaf children
As well as the practical advice and support that the National Deaf Children’s Society can provide, many families also choose to get involved with an individual group in their local area, of which there are more than 100 across the country.
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