The ataxias are a set of life-limiting neurological conditions that disrupt the messages sent from our brains to our muscles. Not just the muscles we use to move, but those we use to speak, listen and see. Over time, people with ataxia are slowly imprisoned in their own bodies,...
04 September 2025
A parent never imagines their child will be diagnosed with a life limiting or life threatening condition. But when the unimaginable happens, Acorns steps in, helping families cope at every stage of their child’s life and beyond, wherever and whenever they need it. We have three hospices based in...
04 September 2025
The National Deaf Children’s Society is dedicated to creating a world without barriers for deaf children and young people. It is our mission to overcome the social and educational barriers that hold deaf children back. Thanks to the generosity of Childlife supporters, we have been able to provide life-changing...
04 September 2025
The National Children’s Bureau (NCB) has had a successful year delivering impact through our programmes, sector convening and policy work. In this General Election year, we focused on informing political manifestos and policies for children and families, and built a strong working relationship with the newly-elected Government. We organised...
04 September 2025
Eight-year-old Violet is loved by her teachers and classmates and enjoys going to school, where she has a thirst for knowledge and is willing to try anything. The youngest of three siblings, she was diagnosed with Cerebellar ataxia in 2020, inherited from her Dad, and now often needs help...
06 May 2025
If you ask seven-year-old Vinnie about his condition, he’ll tell you he was born with half a heart and that one day he’ll need a new one. Vinnie has hypoplastic left heart syndrome (HLHS). In his short life, he has had three major, open-heart surgeries to help stabilise his...
06 May 2025
A collaborative project between the National Children’s Bureau (NCB), the University of Cambridge and the University of Kent, has investigated the experiences of children and families during social care assessments. Concluding recently after five years, the Living Assessments project looked at the decision-making process for providing health and social...
06 May 2025
Deaf Awareness Week To celebrate Deaf Awareness Week (5-11 May) this year, the National Deaf Children’s Society has been asking deaf people from all walks of life, ‘what would you tell your younger self about growing up deaf’? The theme for Deaf Awareness Week 2025 in the UK is...
06 May 2025
Two thirds of deaf children start school without expected levels of development, compared with a third of all children, highlighting a crucial need to reach families in those early years, with information and support. With the parents of newly-identified deaf children expressing a clear preference for an app as...
05 November 2024
The first years of life are fundamental in a child’s development. Factors including the environment and community they live in, development of language skills, good diet and nutrition, as well as social and emotional wellbeing, all play a part in shaping their future. For a decade, Lambeth Early Action...
05 November 2024
