The National Children’s Bureau has welcomed plans to lower the voting age in the UK to 16, in time for the next General Election. Members of the Young NCB network have long expressed their desire for 16 and 17-year-olds to be able to make their opinions heard in the...
06 November 2025
Most deaf children are born into hearing families who do not have previous experience of deafness. Parents are thrown into a world of navigating audiology appointments, disability benefits, schooling challenges and more, all whilst maintaining all other aspects of family life. The National Deaf Children’s Society gives advice and...
06 November 2025
Max is a happy, cheeky five-year-old, with an adventurous spirit and loves his favourite teddy – Mr Sloth. Born after mum Lizzie had experienced a normal pregnancy, it was a shock when he arrived and doctors noticed something wasn’t quite right. Following resuscitation at birth, and noticeably low muscle...
06 November 2025
Myles is a seven-year-old who loves to crawl around a soft play with a smile on his face, despite the extra effort that it can take him, due to his ataxia symptoms. In Myles’s case, his cerebellar ataxia is a clinical feature of his primary condition, 4H Leukodystrophy, diagnosed...
06 November 2025
The ataxias are a set of life-limiting neurological conditions that disrupt the messages sent from our brains to our muscles. Not just the muscles we use to move, but those we use to speak, listen and see. Over time, people with ataxia are slowly imprisoned in their own bodies,...
04 September 2025
A parent never imagines their child will be diagnosed with a life limiting or life threatening condition. But when the unimaginable happens, Acorns steps in, helping families cope at every stage of their child’s life and beyond, wherever and whenever they need it. We have three hospices based in...
04 September 2025
The National Deaf Children’s Society is dedicated to creating a world without barriers for deaf children and young people. It is our mission to overcome the social and educational barriers that hold deaf children back. Thanks to the generosity of Childlife supporters, we have been able to provide life-changing...
04 September 2025
The National Children’s Bureau (NCB) has had a successful year delivering impact through our programmes, sector convening and policy work. In this General Election year, we focused on informing political manifestos and policies for children and families, and built a strong working relationship with the newly-elected Government. We organised...
04 September 2025
Eight-year-old Violet is loved by her teachers and classmates and enjoys going to school, where she has a thirst for knowledge and is willing to try anything. The youngest of three siblings, she was diagnosed with Cerebellar ataxia in 2020, inherited from her Dad, and now often needs help...
06 May 2025
If you ask seven-year-old Vinnie about his condition, he’ll tell you he was born with half a heart and that one day he’ll need a new one. Vinnie has hypoplastic left heart syndrome (HLHS). In his short life, he has had three major, open-heart surgeries to help stabilise his...
06 May 2025
