09 May 2019
For parents, Claire and Simon, attending Acorns Children’s Hospice with their five-year-old son George, who has Batten Disease, means they feel less isolated, supported and safe. “It’s our release button, it’s our escape, it’s our sanctuary.” Up until the age of three, George hit all the major milestones, like every...
22 November 2018
Taye was seven months old when he was diagnosed with a rare condition, generalised bilateral cerebral polymicrogyria, which causes epilepsy, vision and development problems, as well as stiffness in his muscles. Taye’s Mum, Chealse, had spent the first few months of his life going back and forth to A&E...
09 May 2018
Ten-year-old Isabella has Neuroblastoma, a rare childhood cancer and was diagnosed when she was just three years old. A whole week of chemotherapy treatment in hospital every month means she then has to spend two weeks recovering at home. Mum Jennie, says: “For two weeks following the chemotherapy, Isabella...