• National Deaf Children’s Society 21/22 review

    The National Deaf Children’s Society is dedicated to creating a world without barriers for deaf children and young people. We work to overcome the social and educational barriers that hold deaf children back, by: – helping families give the best possible support to their deaf child every step of...

    23 August 2022

  • Ataxia UK 21/22 review

    The ataxias are a set of life-limiting neurological conditions that disrupt the messages sent from our brains to our muscles. Not just the muscles we use to move, but those we use to speak, listen and see. Over time, people with ataxia are slowly imprisoned in their own bodies,...

    23 August 2022

  • Acorns Children’s Hospice 21/22 review

    Acorns Children’s Hospice provides care, support, fun and laughter for children and their families across the West Midlands. A parent never imagines their child will be diagnosed with a life limiting or life threatening condition. But when the unimaginable happens, Acorns steps in, helping families cope at every stage...

    23 August 2022

  • Investing in childhood

    The heart of the National Children’s Bureau (NCB)’s ethos, is for every child to be safe, secure and supported and to build a better childhood for every child. You may have seen their #ChildrenAtTheHeart and #BuildBackChildhood campaigns, which have the support of over 700 organisations from across the children’s...

    12 May 2022

  • The impact of an ataxia diagnosis

    Soon after Christmas 2019, Amy made a GP appointment for Darcy, then seven – she was concerned that something significant had changed with the way she walked.  At around the same time, teachers at school, dancing and swimming lessons had mentioned issues with her balance and mobility.  The diagnosis...

    12 May 2022

  • Jack’s story

    Jack was a regular visitor to Acorns Children’s Hospice for 16 years, until he sadly passed away in November 2020.  His parents, Sharon and Dale, remember how those visits enabled their family to carry on through the toughest of times. Jack arrived just over five weeks early and he...

    12 May 2022

  • A world without barriers

    In 2006, after decades of campaigning by the National Deaf Children’s Society, newborn hearing screening was introduced across the UK. All children now have a hearing test in their first few weeks. Early diagnosis means that more deaf children get the help and support they need, sooner. But, 35...

    12 May 2022

  • Born too soon

    Sam and Mike are Mum and Dad to Alexus, Natalie and Rachel.  They are supported by Childlife member charity, Acorns Children’s Hospice.  Mike tells us their story: “Our twin girls, Alexus and Natalie, were born at 23 weeks. When born that early a baby’s lungs are not fully developed...

    16 December 2021

  • Short breaks provide safety net

    Acorns Children’s Hospice isn’t only about end of life care.  It’s about enabling children and families to live life to the full, with the emotional, clinical and medical care they need – often over many years.  This can include tailored nursing care during short breaks in the hospice and...

    18 November 2021

  • Facing ataxia’s huge challenges

    Oli is 12 years old and has Friedreich’s Ataxia (FA). In Year 6 he kept falling over at school and was sent straight to hospital where he stayed for a week. In that time, he had scans, blood tests, more scans, a lumbar puncture and then a genetic test,...

    18 November 2021