When no one else quite understands, Ataxia UK makes the world easier to navigate. Parents often have a sixth sense that something is ‘not quite right’ with their child. And as Phoebe’s mum is also a nurse, she knew the warning signs which should not be ignored. ‘Phoebe was...
14 November 2023
The ataxias are a set of life-limiting neurological conditions that disrupts the messages sent from our brains to our muscles. Not just the muscles we use to move, but those we use to speak, listen and see. Over time, people with ataxia are slowly imprisoned in their own bodies,...
04 September 2023
The National Deaf Children’s Society is dedicated to creating a world without barriers for deaf children and young people. We work to overcome the social and educational barriers that hold deaf children back, by: helping families give the best possible support to their deaf child every step of the...
04 September 2023
As the National Children’s Bureau (NCB) celebrates its 60th year in 2023, we continue to bring people and organisations together to drive change in society and deliver a better childhood across the UK. This year there were a number of important milestones for NCB centred around our core purpose...
04 September 2023
Acorns Children’s Hospice provides care, support, fun and laughter for children and their families across the West Midlands. This support is offered from our three children’s hospices, based in Birmingham, Walsall and Worcester, and in the community. Over the past year we’ve achieved so much thanks to the generosity...
04 September 2023
Thanks to a campaign by the Childhood Bereavement Network (CBN), part of the National Children’s Bureau, cohabiting parents and carers will now be able to claim the same bereavement benefits to help bring up their children as if they had been married or in a civil partnership. It’s estimated...
04 May 2023
The National Deaf Children’s Society is one of 125 organisations who have signed an open letter to the Government to highlight the inadequacies in specialist support for children and young people with special educational needs and disabilities (SEND) in England. A wide range of professionals, including Teachers of the...
04 May 2023
Exciting research from two ground-breaking studies shows the power of wearable technology and artificial intelligence in monitoring movement disorders, including Friedreich’s ataxia (FA). FA is the most common type of hereditary ataxia, often presenting in childhood or adolescence. Around 500 children in the UK have ataxia, impairing their balance,...
04 May 2023
Acorns hospice in Walsall has touched the lives of thousands of children and their families over the last 20 years. The charity provides nursing care and emotional support of the highest quality, but because of financial pressures, it’s not been possible to keep the building looking and feeling it’s...
04 May 2023
The National Children’s Bureau, one of the four Childlife charities, recently brought together more than 100 children and young people with special educational needs and disabilities (SEND) to take part in their annual Youth Voice Matters conference. The national conference is co-developed and co-delivered by FLARE, the young SEND...
21 March 2023
