• 22 November 2018

    Understanding ataxia

    Joanna, known as Jo-Jo, is a “happy little girl with a sunny nature” and, says Mum Susie, “she loves music and can often be heard singing loudly at the top of her voice”.  The six-year-old also has a keen eye for fashion and likes to give a thumbs up...

  • 22 November 2018

    Jo-Jo and Gillespie Syndrome

    A journey into the unknown by Susie and Ben Slack When we decided to include Jo-Jo’s story in our InTouch Autumn newsletter to supporters, we received the following, which we felt we really wanted to publish in full online, as we are limited to shorter articles in our printed...

  • 22 November 2018

    Lewis Raises the Bar

    Nine-year-old Lewis has a moderate to severe hearing loss and a passion and talent for music, as his recent appearance playing the piano on stage in Birmingham shows. Lewis was taking part in an annual project developed by the National Deaf Children’s Society to increase expectations of what deaf...

  • 09 May 2018

    In safe hands

    Ten-year-old Isabella has Neuroblastoma, a rare childhood cancer and was diagnosed when she was just three years old.  A whole week of chemotherapy treatment in hospital every month means she then has to spend two weeks recovering at home. Mum Jennie, says: “For two weeks following the chemotherapy, Isabella...

  • 03 May 2018

    Belle’s dancing ambition

    Belle, aged ten, recently won a local street dance competition – adding another trophy to a growing collection.  For Belle though, the very fact that she can dance along to the sound of her favourite tunes is an achievement in itself. Belle was born with a cleft lip and...

  • 03 May 2018

    Ronnie’s story

    ‘Ataxia’ describes a range of neurological disorders that affect balance, coordination and speech. There are many different types of ataxia that affect people in different ways and for nine-year-old Ronnie, this means he’s never been able to walk, has difficulty swallowing, coping with loud noises and has a squint....

  • 02 May 2018

    Child poverty increasing

    It’s a shocking statistic that there are parts of the UK where more than half of the children are growing up in poverty.  The figures have been revealed in a study published in January by the End Child Poverty coalition, of which the National Children’s Bureau (NCB) is a...

  • 07 March 2018

    Free Will Writing Offer

    We are pleased to announce our new partnership with Jones Whyte Solicitors, to offer a Free Will or Free Will Review service, as well as a half price Lasting Power of Attorney service. Anyone, whether already a Childlife supporter or not, is welcome to take advantage of this offer.  There...

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