06 November 2025
Myles is a seven-year-old who loves to crawl around a soft play with a smile on his face, despite the extra effort that it can take him, due to his ataxia symptoms. In Myles’s case, his cerebellar ataxia is a clinical feature of his primary condition, 4H Leukodystrophy, diagnosed...
06 May 2025
Eight-year-old Violet is loved by her teachers and classmates and enjoys going to school, where she has a thirst for knowledge and is willing to try anything. The youngest of three siblings, she was diagnosed with Cerebellar ataxia in 2020, inherited from her Dad, and now often needs help...
05 November 2024
Navigating the early years of a diagnosis is a critical time for parents. For Bryce’s family, finding Ataxia UK was the turning point, having been told that he has a type of cerebellar ataxia known as AOA1. They were able to attend an Ataxia UK conference which helped them...
30 April 2024
Through Ataxia UK’s network, families are able to connect with one another and benefit from the support of shared experiences. After a regular health check at two-years-old, Maisie was referred to a specialist and subsequently diagnosed with cerebellar ataxia atrophy aged three, turning her family’s world upside-down. With the...