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10 November 2022
Supporting Penny-Mae
Penny-Mae is 11 and has ataxia, as well as other complex needs, presenting challenges to her Mum, Emma, in all aspects of her life. She has low muscle tone throughout her body, with her legs being particularly affected, so she crawls to get around indoors and wears splints to...
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12 May 2022
The impact of an ataxia diagnosis
Soon after Christmas 2019, Amy made a GP appointment for Darcy, then seven – she was concerned that something significant had changed with the way she walked. At around the same time, teachers at school, dancing and swimming lessons had mentioned issues with her balance and mobility. The diagnosis...
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18 November 2021
Facing ataxia’s huge challenges
Oli is 12 years old and has Friedreich’s Ataxia (FA). In Year 6 he kept falling over at school and was sent straight to hospital where he stayed for a week. In that time, he had scans, blood tests, more scans, a lumbar puncture and then a genetic test,...
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17 June 2021
Living with ataxia in a pandemic
We asked Laura, Mum to 10-year-old Kayden, how the last year or so has been for her and her family, and how the future looks for them in a post-pandemic world. “My son, Kayden, loves Gloucester rugby, playing football for the local learning disability football team, cooking and cycling....
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