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16 June 2021
Living with episodic ataxia
When we last wrote about Jade, now 15, she was eight and loved playing the recorder, horse riding, dance and canoeing. Having been diagnosed as a toddler with episodic ataxia, which affects people in bouts or attacks of unsteadiness lasting hours or days, her Mum Ceri says she has...
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17 November 2020
The challenges of lockdown
Kieran, has faced the challenges of lockdown head-on, with Mum Leeann doing her best to keep up with him! Friedreich’s Ataxia (FA) means that Kieran’s coordination, balance and strength is compromised, so deciding to embark on a fundraising cycle ride of 70km in a month was quite a challenge...
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04 June 2020
Ataxia UK – adapting during Covid-19
During the Covid-19 pandemic and the ensuing lockdown, all charities have had to adapt the way in which they provide their services. We caught up with Childlife Trustee, Dan Beacon, who is Head of Fundraising and Communications at our member charity, Ataxia UK, to find out some of the...
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03 May 2020
New paediatric ataxia centre
In December last year, Ataxia UK opened their first Paediatric Ataxia Centre, in Sheffield, with the intention to provide the best possible outpatient care to children and families, including diagnosis, treatment including advanced neuro-imaging and genetic testing of ataxias. Ataxia is often not recognised initially by GP’s, since it...
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