14 November 2023
When no one else quite understands, Ataxia UK makes the world easier to navigate. Parents often have a sixth sense that something is ‘not quite right’ with their child. And as Phoebe’s mum is also a nurse, she knew the warning signs which should not be ignored. ‘Phoebe was...
04 September 2023
The ataxias are a set of life-limiting neurological conditions that disrupts the messages sent from our brains to our muscles. Not just the muscles we use to move, but those we use to speak, listen and see. Over time, people with ataxia are slowly imprisoned in their own bodies,...
04 May 2023
Exciting research from two ground-breaking studies shows the power of wearable technology and artificial intelligence in monitoring movement disorders, including Friedreich’s ataxia (FA). FA is the most common type of hereditary ataxia, often presenting in childhood or adolescence. Around 500 children in the UK have ataxia, impairing their balance,...
10 November 2022
Penny-Mae is 11 and has ataxia, as well as other complex needs, presenting challenges to her Mum, Emma, in all aspects of her life. She has low muscle tone throughout her body, with her legs being particularly affected, so she crawls to get around indoors and wears splints to...