• 03 May 2020

    New paediatric ataxia centre

    In December last year, Ataxia UK opened their first Paediatric Ataxia Centre, in Sheffield, with the intention to provide the best possible outpatient care to children and families, including diagnosis, treatment including advanced neuro-imaging and genetic testing of ataxias. Ataxia is often not recognised initially by GP’s, since it...

  • 20 November 2019

    The Life of Rileys

    The Riley family from Hull are just like millions of families across the UK – there’s, Dad James, Mum Lucy ten-year-old Thomas and a new baby to keep them all on their toes. However, the family do face some extra challenges, as two years ago Thomas was diagnosed with...

  • 09 May 2019

    Growing up with ataxia

    Ataxia UK’s 16-30 Project is ensuring that children and young people with ataxia have an opportunity to continue to receive support into adulthood. One of the difficulties for any child with a long-term medical condition is the transition stage to adulthood. This is often a time when the services...

  • 22 November 2018

    Understanding ataxia

    Joanna, known as Jo-Jo, is a “happy little girl with a sunny nature” and, says Mum Susie, “she loves music and can often be heard singing loudly at the top of her voice”.  The six-year-old also has a keen eye for fashion and likes to give a thumbs up...