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Category: Ataxia UK
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New paediatric ataxia centre
In December last year, Ataxia UK opened their first Paediatric Ataxia Centre, in Sheffield, with the intention to provide the best possible outpatient care to children and families, including diagnosis, treatment including advanced neuro-imaging and genetic testing of ataxias. Ataxia is often not recognised initially by GP’s, since it...
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The Life of Rileys
The Riley family from Hull are just like millions of families across the UK – there’s, Dad James, Mum Lucy ten-year-old Thomas and a new baby to keep them all on their toes. However, the family do face some extra challenges, as two years ago Thomas was diagnosed with...
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Growing up with ataxia
Ataxia UK’s 16-30 Project is ensuring that children and young people with ataxia have an opportunity to continue to receive support into adulthood. One of the difficulties for any child with a long-term medical condition is the transition stage to adulthood. This is often a time when the services...
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Understanding ataxia
Joanna, known as Jo-Jo, is a “happy little girl with a sunny nature” and, says Mum Susie, “she loves music and can often be heard singing loudly at the top of her voice”. The six-year-old also has a keen eye for fashion and likes to give a thumbs up...
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