Phoebe’s mum, Hannah knew something was ‘not quite right’ with her daughter. Still, it took nearly a year and several wrong turns before arriving at a diagnosis of Friedreich’s ataxia; a little-known condition that brought with it a lot of worries and questions.
Bringing back joy
Mum Nizet would do anything for her daughter, Marwah; a happy bubbly little girl who has a rare life-limiting condition. But providing round-the-clock care still takes a huge toll on her energy levels and her opportunity to just be ‘Mum’.
A meaningful platform
National Children’s Bureau has just launched an innovative project to help care-experienced young people to share their experiences through creative mediums such as painting, poetry, and theatre, and to help shape the solutions that will actually meet their needs.
The very best start
National Deaf Children’s Society has just launched a new five-year strategy that seeks to transform the lives of even more deaf children by strengthening support in the early years and as soon deafness is first identified.
Other news …
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