When we last wrote about Jade, now 15, she was eight and loved playing the recorder, horse riding, dance and canoeing. Having been diagnosed as a toddler with episodic ataxia, which affects people in bouts or attacks of unsteadiness lasting hours or days, her Mum Ceri says she has...
16 June 2021
At the beginning of the pandemic, the National Deaf Children’s Society had to quickly adapt to a new environment and move much of their support online – ensuring families were still able to communicate with their deaf child was a priority. So, during the first lockdown they launched a...
16 June 2021
Acorns Children’s Hospice is the UK’s largest children’s hospice charity, measured by the number of children and families we support. We provide care, support, fun and laughter for children with life limiting or life threatening conditions and their families across the West Midlands. Our reputation for excellence and high...
16 June 2021
The National Deaf Children’s Society is dedicated to creating a world without barriers for deaf children and young people. We work to overcome the social and educational barriers that hold deaf children back, by: helping families give the best possible support to their deaf child every step of the...
16 June 2021
The ataxias are a set of life-limiting neurological conditions that disrupts the messages sent from our brains to our muscles. Not just the muscles we use to move, but those we use to speak, listen and see. Over time, people with ataxia are slowly imprisoned in their own bodies,...
16 June 2021
The National Children’s Bureau brings people together to bring about the best for the UK’s children and young people. We strengthen the ecosystem of support and services that exists to help them grow up safe, secure and happy. For the past year, we have been working flat out to...
03 June 2021
In March 2020, we ceased all our face-to-face fundraising in residential and retail locations, in line with the requirements of lockdown surrounding the Covid-19 pandemic and to protect both our fundraisers and the public. The likelihood is that if you are a current Childlife supporter, it’s because you spoke...
03 January 2021
As part of Treacher Collins Syndrome, Maia has bilateral microtia atresia. This means both of her ears are underdeveloped, with no ear canal openings, and this contributes to her conductive hearing loss. Mum, Josie, explains some of the problems that this can cause teenager Maia, in daily life. “A...
15 December 2020
The UK lockdown and subsequent changes to our daily lives have brought with them a heightened awareness and discussion of our mental health. Young and old have experienced unprecedented challenges, with regular social contact impacted and face-to-face support services suspended, and infant mental health is no exception. As lockdown...
17 November 2020
Kieran, has faced the challenges of lockdown head-on, with Mum Leeann doing her best to keep up with him! Friedreich’s Ataxia (FA) means that Kieran’s coordination, balance and strength is compromised, so deciding to embark on a fundraising cycle ride of 70km in a month was quite a challenge...
17 November 2020
