12 May 2022
Soon after Christmas 2019, Amy made a GP appointment for Darcy, then seven – she was concerned that something significant had changed with the way she walked. At around the same time, teachers at school, dancing and swimming lessons had mentioned issues with her balance and mobility. The diagnosis...
18 November 2021
Oli is 12 years old and has Friedreich’s Ataxia (FA). In Year 6 he kept falling over at school and was sent straight to hospital where he stayed for a week. In that time, he had scans, blood tests, more scans, a lumbar puncture and then a genetic test,...
17 June 2021
We asked Laura, Mum to 10-year-old Kayden, how the last year or so has been for her and her family, and how the future looks for them in a post-pandemic world. “My son, Kayden, loves Gloucester rugby, playing football for the local learning disability football team, cooking and cycling....
16 June 2021
When we last wrote about Jade, now 15, she was eight and loved playing the recorder, horse riding, dance and canoeing. Having been diagnosed as a toddler with episodic ataxia, which affects people in bouts or attacks of unsteadiness lasting hours or days, her Mum Ceri says she has...