17 November 2020
Kieran, has faced the challenges of lockdown head-on, with Mum Leeann doing her best to keep up with him! Friedreich’s Ataxia (FA) means that Kieran’s coordination, balance and strength is compromised, so deciding to embark on a fundraising cycle ride of 70km in a month was quite a challenge...
04 June 2020
During the Covid-19 pandemic and the ensuing lockdown, all charities have had to adapt the way in which they provide their services. We caught up with Childlife Trustee, Dan Beacon, who is Head of Fundraising and Communications at our member charity, Ataxia UK, to find out some of the...
03 May 2020
In December last year, Ataxia UK opened their first Paediatric Ataxia Centre, in Sheffield, with the intention to provide the best possible outpatient care to children and families, including diagnosis, treatment including advanced neuro-imaging and genetic testing of ataxias. Ataxia is often not recognised initially by GP’s, since it...
20 November 2019
The Riley family from Hull are just like millions of families across the UK – there’s, Dad James, Mum Lucy ten-year-old Thomas and a new baby to keep them all on their toes. However, the family do face some extra challenges, as two years ago Thomas was diagnosed with...