Soon after Christmas 2019, Amy made a GP appointment for Darcy, then seven – she was concerned that something significant had changed with the way she walked. At around the same time, teachers at school, dancing and swimming lessons had mentioned issues with her balance and mobility. The diagnosis...
12 May 2022
Jack was a regular visitor to Acorns Children’s Hospice for 16 years, until he sadly passed away in November 2020. His parents, Sharon and Dale, remember how those visits enabled their family to carry on through the toughest of times. Jack arrived just over five weeks early and he...
12 May 2022
In 2006, after decades of campaigning by the National Deaf Children’s Society, newborn hearing screening was introduced across the UK. All children now have a hearing test in their first few weeks. Early diagnosis means that more deaf children get the help and support they need, sooner. But, 35...
12 May 2022
Sam and Mike are Mum and Dad to Alexus, Natalie and Rachel. They are supported by Childlife member charity, Acorns Children’s Hospice. Mike tells us their story: “Our twin girls, Alexus and Natalie, were born at 23 weeks. When born that early a baby’s lungs are not fully developed...
16 December 2021
Acorns Children’s Hospice isn’t only about end of life care. It’s about enabling children and families to live life to the full, with the emotional, clinical and medical care they need – often over many years. This can include tailored nursing care during short breaks in the hospice and...
18 November 2021
Oli is 12 years old and has Friedreich’s Ataxia (FA). In Year 6 he kept falling over at school and was sent straight to hospital where he stayed for a week. In that time, he had scans, blood tests, more scans, a lumbar puncture and then a genetic test,...
18 November 2021
The National Deaf Children’s Society is a key voice in the deaf community, representing deaf children, young people and their families as an advocate and policy influencer. One of the ways they support deaf children is through Children’s Hearing Services Working Groups (CHSWGs), affectionately known as ‘Chizzywigs’. CHSWGs are...
18 November 2021
The Covid-19 pandemic has been one of the most challenging times that schools have ever faced. They have achieved a remarkable amount in making sure that children and young people have been kept safe whilst able to continue learning. However, lockdowns and subsequent changes within the school environment are...
18 November 2021
NCB in Northern Ireland is working with the Youth Access, Scottish Youth Parliament, SAMH, ProMo Cymru and Hafal, to transform mental health for young people. Working closely with young people, they have created the Our Minds, Our Future charter, which details the top priorities for improving mental health services....
04 November 2021
We asked Laura, Mum to 10-year-old Kayden, how the last year or so has been for her and her family, and how the future looks for them in a post-pandemic world. “My son, Kayden, loves Gloucester rugby, playing football for the local learning disability football team, cooking and cycling....
17 June 2021
